Wednesday, November 13, 2013

He's Home!

Will came home on Saturday November 2, which just happened to be his 4 month birthday! That week was a crazy one. The doctors had started talking about discharge with us and said it (most likely) be that week, but the previous Sunday (oct 27), Will had a really off day and wasn't wanting to eat anything. That made us nervous and we thought we would be staying longer because of it. BUT he picked up right where he left off eating the next day. The next few days went by so quickly! The nurses began doing all the discharge teaching with us and we were scheduled to "room-in" on friday night. Luckily Matt had already taken Friday off of work so it was going to work perfectly. 

 We quickly finished up the gifts we put together for our nurses! Here's a picture of it. It's a glass ornament with Will's profile silhouette inside with his name and date of birth. Then we attached this cute note we found on pinterest that says- 

"A little something for your tree
For when you see it think of me
And how you saved my life that year
And eased all of my parents fears
You may not wear a cape
You job's not fighting crime
But when i think of super heroes
It's you that comes to mind"


 We cleaned up the house and packed a bag for the night! We were so excited to spend the first night with our man. For the babies that go home on oxygen & monitors, they have the parents stay the night with the baby in a room to make sure everything is working and functioning as it should. 
 Here is the room we stayed in with Will. It was our first night on our own with  Will! 
 We LOVED it so much. We didn't want to put him down! 
 The picture below is of his 'bikini top' as my mom referred to it! Underneath it are two leeds that read his heart rate and respiratory rate. They hook up to a monitor that will alarm when his heart rate is too fast, too slow, or if he is periodic breathing. Most of the time it is only alarming because the leeds are falling off, or if we forget to plug it in to charge. 
 He is such a snuggle bug!


 The next morning the doctor came in and said he was discharging us! We had forgotten the 'coming home' outfit at home in the hustle of everything, so we just put some clothes that we had already been keeping at the hospital for him. We put him in his carseat- he wasn't too happy at first!
 And we were off!! I can't describe the emotions we felt that day. It was all so surreal. It didn't really hit me until we were actually home and I was feeding him. Tears came to my eyes, I hadn't ever imagined what it would be like to have him home because we had never known any different than the hospital! 



 Matt is SO great with Will. Especially during the night! He is so helpful and willing!
 On Sunday afternoon my mom and mason arrived! Mason was SO sweet with Will and just wanted to hold him and touch him. It was the cutest!
 My mom came to visit when Will was first born, but at the time he was still in an 'incubator' when he wasn't able to be held. So this was the first time she was able to hold our miracle boy!


 James had been showed pictures of Will on a daily basis so he knew who he was. He was so sweet with Will the first time he met him and it is so fun to watch him interact with him! 

 It was SOO nice having my mom here. She helped so much. Especially during the night. She would take Will and rock him when he was fussy so that we could sleep. She is the best!

 It has been SO nice having Aly live so close! Yesterday she and James walked over to watch Will while I showered. She's THE best! 
 Grandmother and Poppy came to visit!

 Kara just happened to overlap with my mom for a few days, so we had a family dinner with everyone on Friday night. 


 We hated to say goodbye to my mom :( But one day we will live close together! 

 Just missing sweet Taryn!
 We went on our first walk on saturday- Will seemed to like it!
 I am so lucky to be able to snuggle this boy whenever I want! 

 He loves crossing those ankles! We even have an ultrasound with him crossing them!
 We think he is going to have hazel eyes!
 He is growing up so fast. It's hard to believe he's already been home over a week!
 Love this boy with all my heart. 


After 4 months, 123 days in the NICU, we finally have our sweet little miracle baby home. We are still adjusting to the nights, but he give us good 2-4 hour increments where he sleeps and sleeps so we do too! We are so thankful to have him home.

We drove by the hospital the other day, and tears (lots) came to my eyes. 4 months of our year were spent there. We cried there. We laughed there. We hoped there. We loved it there. It was our second home. We became so close to our favorite nurses. During our 4 months there, we didn't know any different. We didn't know what it was like to bring home a baby from the hospital after he was just born, we didn't know what it was like to have a newborn at home. But now, looking back, it is safe to say it was the hardest journey we have ever traveled. It tested our faith, our love, and our strength, among many other things.  

I am so so thankful for the medical technology that we have today that allowed the doctors and nurses to save our little boys life. We will never ever forget them. It is thanks to them that I am able to snuggle my little boy every night. We are so so blessed.

Thank you to all who have contributed prayers to us during these past 4 months. We definitely saw the Lord's hand at work on a daily basis. We couldn't have made it through without all the love and support that was shown to us. We will never be able to repay you, but just know we appreciate you so much. 

And last of all, I want to publicly thank our Lord, our Savior, for giving this sweet spirit to us to care for.  I don't always feel worthy of His love, but i feel it constantly. I see the light of Christ in my sweet little one all the time. I am the luckiest mama and so thankful that our Father in Heaven trusted me with this sweet boy. 


xoxo

Tuesday, October 8, 2013

3 months old

Will is 3 months old now! AND we hit his due date. Cannot believe how fast he is growing up!

A lot has happened since my last post, i've never been good at keeping up a blog!

On September 10th, Will came down with an infection. The doctors immediately started him on 4 different antibiotics while running some tests to see what he had. It ended up being some sort of E-coli. They believe it started as a UTI and then made its way into his blood stream. He was having a hard time breathing, so they moved him from nursery b (well side) back to nursery a (sick side) and had to intubate him, which is placing a tube into his lungs that breaths for him. It was really hard to watch him suffer and have to back track so much, but we were so grateful the doctors and nurses listened to our concerned as Matt and I noticed he was getting sick. Unfortunately we weren't able to hold him at all that day. My poor poor babe. Luckily, the infection only lasted a few days.







The next day was my birthday, it was a good day. Matthew spoiled me, as he usually does. and I was able to hold Will again. Poor little man had an IV in his head for his antibiotics. It is my least favorite place for IV's!
 I spent the day making some nursery crafts for Will's room.




Since the infection, he's just been growing and getting stronger and stronger.
Today Will is 14 weeks old! He's 6 pounds 4.5 ounces and barely fitting into his preemie clothes anymore! His due date was on Friday, Oct 4th. 






Little man is still working on eating. I breastfeed him 3 times a day, and he usually takes 2-3 bottles as well. Within the past few days, he's not done as well as he had been doing. He has pretty severe reflux so a GI specialist is going to examine him and see if there is anything more that they can do to lessen the spitting up he does. Also, they're going to check his ears to make sure he doesn't have an ear infection. Hopefully it's nothing and he's just going through a phase! We are so ready to take him home, but we also understand he needs to be 100% ready to come home. Every day we get closer to that day! 

It's such a long journey, and I know it's not over yet. I've learned so so much about myself, my husband, and of course, I've learned how strong our little man is. 

I'm currently at the hospital from 7:30a-9:30a with matt, then I go back at 1:30-4 and then Matt goes with me again at 7:30-9. 

This past weekend was LDS General Conference. It was so great to watch and I felt the spirit so strongly. During the Saturday afternoon session, Elder Holland spoke and really really touched my heart. Here are a few quotes i jotted down:

"Our pursuit of godliness will be tested and tried again and again."
This quote made me think of my little man. Boy has he been tested!! and he's passed every test with flying colors. I can't imagine the love the our Heavenly Father has for this boy.
"Believe in miracles."
I've received the biggest miracle his year and will forever believe in them.
"Don't run faster than you have strength."
The past 14 weeks have been such an emotional roller coaster. I have to remind myself that I can't do everything. 
"Through any illness or difficult challenge in life to be hopeful about and grateful for."
This quote brings tears to my eyes. I'm currently facing a difficult challenge. Throughout this entire experience, i've felt so blessed for SO many things. Family, medical knowledge and technology, Friends, and so many more things. I am so hopeful and grateful for my little boys life.
"We are infinitely more than our limitations or afflictions"
Can't wait to see what our little man will become.  I know he is so much more than a tiny baby in the NICU. He is the strongest human being I know, and he is such an example to me already.


During the Sunday morning session, Henry B. Eyring spoke and really touched my heart. He told a story about how a women was asking God why she sent her son to her, and the response she felt was

 "I gave him to you because I knew that you would love him no matter what."

The moment I heard that, I related it to my own life. I haven't asked God why he gave Will to me, or why this situation, but I know now why He gave him to me. God knew that I would be there and love Will no matter what. He knew that I would never give up on him and be by his side through his whole life. 

I am so so thankful that God saw in me what I didn't. I am a new person, and I know how fragile life can be. Will is so so precious to me and he will always be my reminder that miracles DO happen. 

Here are a couple other quotes from conference that touched my soul.




Thank you all for the love and support and positive thoughts during these past 14 weeks. We feel so blessed to have so many people loving our sweet babe. 

xoxo